7:10pm
It's been a long day filled with doctors, nurses and the army of other people who have continuously been invading Abi's room asking the same questions.
Since Abi returned from the cath, she has been sleeping for the most part of the day. She didn't eat until 4pm- for 13h. Once she started she drank 5oz of cherry flavored pedialite she'd never had before.
Anyway, we spoke with her surgeon and he chose to go with the double switch TOMORROW! Not longer than yesterday he wasn't really keen on doing this now because she is so small! Her systemic valve though leaks a lot so there is no point in waiting longer. We haven't signed up for that- that's for sure. The surgery will last about 8-9 hours and starts at 7.30. Along with the double switch they will be closing her vsd. It's going to be an even longer day. Probably the most terrifying, nerve wracking and .... The worst day of our lives. Our precious little girl will undergo a huge open heart surgery. Just this morning she was all smiles, cuddly and joyful and no one could tell her condition is so bad.
She will probably stay in icu for a good week, then a week or two in the perdiatrics... No, that's definitely not what we came here for... I'm hoping and praying for the best... Home for Christmas? Let's take one day at the time.
J.
Abigail
Tuesday, December 8, 2009
Subscribe to:
Post Comments (Atom)
About Abi's Blog
HELLO!!
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Early and Intermediate Outcome After Anatomic Repair of CCTGA
Archives
Videos
Popular Posts
-
It's time for the big one. Congenitally Corrected Transposition of the Great Arteries (ccTGA, LTGA). In normal, healthy heart there are...
-
Alright, time for another post. For today I picked another of Abigail's heart's complexities, namely Pulmonary Stenosis (PS). There ...
-
We found out today about the upcoming surgery in Atlanta.. It's scheduled on December 8th. We're leaving on Sunday, December 6th, ...
-
Transposition of the Great Arteries (TGA) In Transpotition of the Great Arteries both, Aorta and Pulmonary Artery are transposed (inverted) ...
CHD Abbreviations:
ASD - Atrial Septal Defect;
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
All babies are extremely resilient, heart babies especially so. I hope that everything goes well tomorrow. You guys will be in my prayers. I'll be checking back for updates.
ReplyDeleteWe love you guys so much Joanna. Know that we will be praying especially fervently tomorrow for precious Abi.
ReplyDeleteGod take care of this beautiful baby girl and wrap her mommy and daddy in your loving arms. Give Joanna & Art the peace they need to get through tomorrow so they can be there...stronger than ever when Abi comes out of surgery. Please watch over the doctors and nurses that will be involved in Abi's surgery and her post-op care. Make sure they are well rested and focused on the needs of their patience above all else. God we ask these things in the name of your son Jesus Christ, Amen.
Hang in there mama and daddy.....and know that you are not going through this alone. Your love, your story and your beautiful daughter have all made an amazing impact on everyone who has heard and our hearts are with you and Abi all the way.
All My Love,
Charissa
We will be lifting you up all day tomorrow dear friends. God we need your power now more than ever. Sweet Abi be strong.
ReplyDeleteWe will be praying all day.
ReplyDeletePraying for your precious child, that God's hand is on her.
ReplyDeleteJoanna,
ReplyDeleteJust wanted you to know that you and your family are in my thoughts. God is in Control.. I pray for a speedy recovery for Abi.
We are praying for you all. Take comfort in knowing god is with you.
ReplyDeleteOur prayers are with you.
ReplyDeleteMy prayers are with you today! The Lord God is your strength. Lean on Him!
ReplyDeleteLove you - Jackie