3:00pm
Abi's heart is beating now!! The double switch is complete. She's lost a lot of blood, as expected, so she's on continuous transfusion. She's still on the bypass though. More updates in 1 hour. So far the surgery is going according to the plan....
J.
Abigail
Wednesday, December 9, 2009
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About Abi's Blog
HELLO!!
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Abi's Heart
CTGA, Ebstein's, VSD, PS
Double Switch Surgery - Part 1
Double Switch Surgery - Part 2
Early and Intermediate Outcome After Anatomic Repair of CCTGA
Archives
Videos
Popular Posts
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It's time for the big one. Congenitally Corrected Transposition of the Great Arteries (ccTGA, LTGA). In normal, healthy heart there are... -
Alright, time for another post. For today I picked another of Abigail's heart's complexities, namely Pulmonary Stenosis (PS). There ... -
We found out today about the upcoming surgery in Atlanta.. It's scheduled on December 8th. We're leaving on Sunday, December 6th, ... -
Transposition of the Great Arteries (TGA) In Transpotition of the Great Arteries both, Aorta and Pulmonary Artery are transposed (inverted) ...
Abi's Doctors
Dr. Craig Greene Cardiologist, Charlotte, NC
Dr. Paul Kirshbom- Cardiothoracic Surgeon, Atlanta, GA
CHD Abbreviations:
ASD - Atrial Septal Defect;
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
thank you, thank you, thank you Lord!!!!!
ReplyDeleteJoanna, I cannot begin to tell you how much this post has touched me. You are by far, one of the strongest people I've ever met. I don't even know you well at all, but this is just proof of that. I just found out today about this and have been thinking of you all day. I'm so glad to hear some positive news as I'm sure you are elated! I'm so sorry you and your family are dealing with this tough time, but you seem very strong in your faith and that will definitely get you through anything. There are MANY people, people you don't even know, praying Abi and your family. That's special! Amy Benson
ReplyDelete:D Wonderful! Thanks for the update.
ReplyDeleteArt and Asia, that is so good to hear. I have had your website up all day praying and waiting for updates. I don't think one moment has gone by today that I have not thought about Abi! Praise Jesus that she is doing so well. I pray the next week - while she is in the NICU - goes quickly and smoothly, and that she heals rapidly. Please let us know if there is anything we can do!
ReplyDelete~Chastity Harris~
THANK GOD THANK GOD THANK GOD!
ReplyDeleteTHANK YOU GOD THANK YOU GOD THANK YOU GOD
ReplyDelete-Susie
That is great news indeed.
ReplyDelete"Angel of God, my Guardian Dear,
ReplyDeleteTo whom his love commits me here.
Ever this day be at my side,
To light and guard, to rule and guide."
Art,
I just wanted to let you know that I'm thinking about you, your wife and Abigail. My thoughts and prayers are with you all!
Take Care,
Lisa (Dave's friend)
Wonderful, glorious news indeed! Continued prayers sent your way! ~Janet
ReplyDeleteGod is Awesome!
ReplyDelete