12:45pm
Update from a minute ago: first part of the switch is complete; one of the clamps is removed; starting to warm up the room (its 60F now); Jackie - the nurse came to tell us that dr Kirshbom - the surgeon, is an excellent specialist and God is using his hands, and the OR is filled with angels. This was a confirmation of God speaking through others earlier:
Krista G. (12-08-09): "it will be a super natural-natural thing. The surgeon will be a puppet if you will and the HS will be guiding his hands and giving him strength to do the task speaking in to his ear what move to make next. The surgeon will say in the end that is the easiest/complex surgery I have ever done."
Karl C. (12-09-09 12:18pm): While I was praying this morning, I saw Jesus came into the OR and touched Abi on her head, and he then walked around and touch all the surgeons and nurses.
We feel at peace right now...
J.
Abigail
Wednesday, December 9, 2009
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About Abi's Blog
HELLO!!
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Early and Intermediate Outcome After Anatomic Repair of CCTGA
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Popular Posts
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It's time for the big one. Congenitally Corrected Transposition of the Great Arteries (ccTGA, LTGA). In normal, healthy heart there are...
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Alright, time for another post. For today I picked another of Abigail's heart's complexities, namely Pulmonary Stenosis (PS). There ...
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We found out today about the upcoming surgery in Atlanta.. It's scheduled on December 8th. We're leaving on Sunday, December 6th, ...
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Transposition of the Great Arteries (TGA) In Transpotition of the Great Arteries both, Aorta and Pulmonary Artery are transposed (inverted) ...
CHD Abbreviations:
ASD - Atrial Septal Defect;
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
Joanna, please just continue to trust God, I am and have been praying for your strength. I already know that Abi is already taken care of. in the name of JESUS!!!
ReplyDeleteDarion Jackson
I nearly wept when I read this.
ReplyDelete"Jackie - the nurse came to tell us that dr Kirshbom - the surgeon, is an excellent specialist and God is using his hands, and the OR is filled with angels. This was a confirmation of God speaking through others earlier:"
Me reading this re-assures me that God has heard my prayers as well. I am greatly pleased that you all have felt peace during this time. I will continue to pray for you all. I know Abi surely is ready to hold momma and daddy.
Keep praying for her, and the surgeons. I will continue to pray for her and you. Thanks for the update. God bless. Allen
Our little girl had her DS in June. It was the longest 12 hours of my life. She had a lot of complications and we spent 2 months at the hospital. Today she is sitting on my lap. She still has a far way to go before she is caught up to other kids her age, but she's here. Let me know if you ever need to talk or have questions about recovery from DS.
ReplyDeleteSteph
Jo and Art
ReplyDeleteI wanted to let you know that my thoughts and prayers have been with Abi since I first heard of her condition. I know she is in the best hands possible and she has so much love and support from her family. I will keep Abi and your entire family in my thoughts and will pray for her every day.
Brent
I remember connecting with you on BC a few weeks ago but had no idea this was to happen so soon! I guess you didn't either. I am praying for the doctors and you and mainly Abi right now. Please keep us updated. We're more than two years post double switch so if you have any questions about recovery, feel free to ask. Even if you just want to vent a little while you're in the hospital, I understand what it's like. You can email me at ekbeckemeier@yahoo.com
ReplyDeleteErin
Paul Kirshbom is a wonderful surgeon. He operated on our daughter in July 0f 2008.
ReplyDelete