7:45pm
Abi's sound asleep. We are after the night routine, that is getting better and better every day, namely less fussing before going to bed. Sometimes, I think she reminds herself: " hey, I haven't cried all day, that's my last chance today'.. In other words, she is such a content baby. She cried only 2 times today, both times when she was super hungry and I was super slow, preparing all the ingredients for supper: milk with rice cereal and a banana.. It was a feast this afternoon.
We LOVE banana!!!!!!!
As I get to spend more time with her and much less working, actually not working at all...I've become a first witness of her many very "firsts". It's so exciting to watch her grow so fast. Since her mended heart doesn't beat like she's run a marathon anymore, the changes are even more noticeable, because she has strength to focus on other activities...
For example, today, she started raising her hands as I approach her and tell her to "come to mommy". I don't pick her up until I say that and wait for her response and sometimes I lift her hands, so she knows what to do when she wants to be picked up.... She's such a fast learner!!
Also, for the first time she held her bottle and drank from it!!!
I still am unsure whether it was a planned action, but it looked like it was intentional.. and she looked a.d.o.r.a.b.l.e.!!
Tomorrow, our first follow-up visit with the cardiologist. We are bringing the chest x-rays we did today for him to review. It was quite a ride with the radiology technicians today. They asked us back 3 times to take pictures, after we continued to dress and undress Abi and headed to the registration area to wait for the pictures... 3 times!!! Unbelievable! And every time, we had to unstrap and take Abi from the car seat, undress her and put her on the uncomfortable, hard table in 2 different positions, dress her back up, put in the car seat and leave the radiology room.
So yes, Abi was mad! I need to correct my previous statement about how many times she cried today... add three more :)
At the third time, I requested to stay in the room and wait for the technicians to come back to let us know if the pictures were clear... third time lucky..., so Merry Christmas and 1,5hours later we were done. Oh, and the x-ray pictures take 3 seconds for those who may wonder.
With a hint of sarcasm and a spice of humor... I'm saying: "better those pictures are really goood!!"
Have a blessed night,
J.
Abigail
Monday, December 21, 2009
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About Abi's Blog
HELLO!!
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Early and Intermediate Outcome After Anatomic Repair of CCTGA
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CHD Abbreviations:
ASD - Atrial Septal Defect;
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect