1.03pm
The echo was sufficient and no cath is needed today. We will be going home soon just right after we schedule another open heart surgery ;-(
The cardiologist was surprised how well Abi's doing and how great everything else works, nevertheless correcting this issue should not wait longer than 3-4 weeks and can be done only through another open heart surgery.
The first plan was to do the surgery this Friday because they thought Abi was not doing well. Since that's not the case we will have to come back in couple weeks.
Another update soon.
Art
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Abigail
Wednesday, February 17, 2010
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About Abi's Blog
HELLO!!
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Abi's Heart
CTGA, Ebstein's, VSD, PS
Double Switch Surgery - Part 1
Double Switch Surgery - Part 2
Early and Intermediate Outcome After Anatomic Repair of CCTGA
Archives
Videos
Popular Posts
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It's time for the big one. Congenitally Corrected Transposition of the Great Arteries (ccTGA, LTGA). In normal, healthy heart there are... -
Alright, time for another post. For today I picked another of Abigail's heart's complexities, namely Pulmonary Stenosis (PS). There ... -
We found out today about the upcoming surgery in Atlanta.. It's scheduled on December 8th. We're leaving on Sunday, December 6th, ... -
Transposition of the Great Arteries (TGA) In Transpotition of the Great Arteries both, Aorta and Pulmonary Artery are transposed (inverted) ...
Abi's Doctors
Dr. Craig Greene Cardiologist, Charlotte, NC
Dr. Paul Kirshbom- Cardiothoracic Surgeon, Atlanta, GA
CHD Abbreviations:
ASD - Atrial Septal Defect;
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
I'm sorry to hear about the open heart surgery :( ...but if this makes her breathe better and have a more healthy development, then let those great Dr's fix her right up. My thoughts are with you as you travel home. Be safe. ~SRH
ReplyDeletePrayers, prayers and more prayers. ~JRM~
ReplyDelete:'( can't help but confess my disappointment... but still faithful and praying...
ReplyDeleteI'm so sorry to hear this news...I will be praying for your family and the Dr.'s and nurses who will be caring for Abi. This is no surprise to the One who created Abi and He will never leave you or forsake you.
ReplyDeleteFrom Vienna I send some prayers,
ReplyDeleteAndrea
PS: Best Regards to Allison.
Wow I'm so so sorry to ehar this for you and your precious Abi. This beyond stinks!!! It just goes to show that CHD is never really cured. I'm sure your heart is broken over the news but please have faith. She did amazingly well with her last very complex surgery, she will breeze through this one I'm sure. I know that either way it is hard as my daughter is facing her 2nd surgery this Tuesday the 23rd and I hate it but I know she needs it. I will be praying for your sweetheart.
ReplyDeleteMichelle
www.withallmyhearts.blogspot.com