This morning I spoke with Dr. Kirshbom and got some more information. Since Abi is doing so well and she hasn't been sick the best move would be to do the surgery as soon as possible; in Kirshbom's words better next week than in 2 weeks. The surgery itself will take about 3 to 4 hours, but most of it will be getting Abi ready. Once she's ready, and opened up and on bypass machine fixing the issue will take about 20 minutes. He said if she does as she did after the double switch she should be out in less than a week. This is what I am really looking forward to. Need to pray there will be no complications nor lung infections.
Today we have to call Atlanta and tell them if we want the surgery next Friday, Feb 26 or the following Wednesday, March 3.
We are still talking about it, since J doesn't want the surgery at all. Yeah, not that I want it, but I don't think we have other options.
Art
Abigail
Friday, February 19, 2010
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About Abi's Blog
HELLO!!
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Abi's Heart
CTGA, Ebstein's, VSD, PS
Double Switch Surgery - Part 1
Double Switch Surgery - Part 2
Early and Intermediate Outcome After Anatomic Repair of CCTGA
Archives
Videos
Popular Posts
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It's time for the big one. Congenitally Corrected Transposition of the Great Arteries (ccTGA, LTGA). In normal, healthy heart there are... -
Alright, time for another post. For today I picked another of Abigail's heart's complexities, namely Pulmonary Stenosis (PS). There ... -
We found out today about the upcoming surgery in Atlanta.. It's scheduled on December 8th. We're leaving on Sunday, December 6th, ... -
Transposition of the Great Arteries (TGA) In Transpotition of the Great Arteries both, Aorta and Pulmonary Artery are transposed (inverted) ...
Abi's Doctors
Dr. Craig Greene Cardiologist, Charlotte, NC
Dr. Paul Kirshbom- Cardiothoracic Surgeon, Atlanta, GA
CHD Abbreviations:
ASD - Atrial Septal Defect;
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
Praying for the right timing and another miraculous recovery ~ but my heart is with you too. I don't want to wish your life away ~ but I will rejoice w/you when you are past this trial!
ReplyDeleteOh that we can again be so amazed AGAIN at how God works in the midst of the trial!
If it helps you decide, March 3rd is Conway's birthday. He's a little double switch miracle like Abi! Prayers going out to you guys as you prepare to go through this again.
ReplyDeletePrayers and faith are all I can offer for this difficult decision and surgical procedure. ~JRM~
ReplyDelete