J.
Abigail
Wednesday, March 3, 2010
Abi's running!
We went to visit Abi again. She is doing great! Started initiating to breathe on her own and slowly waking up from anasthesia and started kicking her legs...
J.
J.
We saw her!
2:30pm
We just came back from the CICU. Abi looks soooo beautiful; not swollen, with less IV's, not bleeding much. She may be getting off the ventilator in a couple of hours, maybe by 7pm!!! WOOOOHOOO. This means she may be ready to eat from the bottle at midnight. We are so happy with the progress.
I'll post the picture soon.
We are sitting in the family room now with some good firends who came to spend time with us.
We are planning to go back to see Abi in a few hours, so she can get her well-deserved rest. We need to bring some of her favourite toys and a bottle, so we can feed her when she's ready.
I really hope she will not require a feeding tube.
If she does as well as the nurses and doctors predict, we may be able to leave CICU even tomorrow. I will pray for this to happen, but I'd rather not enter entertain this idea, so I won't get dissapointed.
Still, all is good...
J.
We just came back from the CICU. Abi looks soooo beautiful; not swollen, with less IV's, not bleeding much. She may be getting off the ventilator in a couple of hours, maybe by 7pm!!! WOOOOHOOO. This means she may be ready to eat from the bottle at midnight. We are so happy with the progress.
I'll post the picture soon.
We are sitting in the family room now with some good firends who came to spend time with us.
We are planning to go back to see Abi in a few hours, so she can get her well-deserved rest. We need to bring some of her favourite toys and a bottle, so we can feed her when she's ready.
I really hope she will not require a feeding tube.
If she does as well as the nurses and doctors predict, we may be able to leave CICU even tomorrow. I will pray for this to happen, but I'd rather not enter entertain this idea, so I won't get dissapointed.
Still, all is good...
J.
The surgery is over
12.23pm
We just spoke to Dr. Kirshbom- the surgeon. The surgery is over. Abi did great there were no surprises nor complications. The outcome so far us great and the symptoms we wanted to eliminate seem to be eliminated. The pressures in the lungs and the right ventricle are about 50% down now and it's great.
There were no issues with coming off of the bypass machine, no excessive bleeding and they were able to close her chest.
In about 45 minutes we should be able to see her in CICU.
Art
- Posted using BlogPress from my iPhone
We just spoke to Dr. Kirshbom- the surgeon. The surgery is over. Abi did great there were no surprises nor complications. The outcome so far us great and the symptoms we wanted to eliminate seem to be eliminated. The pressures in the lungs and the right ventricle are about 50% down now and it's great.
There were no issues with coming off of the bypass machine, no excessive bleeding and they were able to close her chest.
In about 45 minutes we should be able to see her in CICU.
Art
- Posted using BlogPress from my iPhone
Surgery#2 - Update 4
11:45am
Our "angel nurse" Jackie is back... She was assisting with another surgery and came to see us as she remembered us from last time. Remember Jackie? Well, she went to OR where Abi is, checked on the situation and called us with an update. Stacy, too called us before so we had 2 updates within 25 minutes. Abi's chest is being closed now and we should be able to see her in about 1,5 hours! Prior to that we will speak with the doctor.
All is good, God is good. We are thankful for your prayers and those who are here with us physically and in their thoughts.
J
Our "angel nurse" Jackie is back... She was assisting with another surgery and came to see us as she remembered us from last time. Remember Jackie? Well, she went to OR where Abi is, checked on the situation and called us with an update. Stacy, too called us before so we had 2 updates within 25 minutes. Abi's chest is being closed now and we should be able to see her in about 1,5 hours! Prior to that we will speak with the doctor.
All is good, God is good. We are thankful for your prayers and those who are here with us physically and in their thoughts.
J
Perz or Perez?
12:00
We were just called to a room#1 where we were told to wait... Wait for what? We just found our Abi's chest is being closed.
Well a few minutes of anticipation resulted in a crying maybe 8 year old Hispanic boy, who just came from the surgery expecting to see his parents. Obviously we didn't look nothing like them, not even mentionig the skin color not matching.
Anyway I cried with the kid wishing this never happens to Abi. The nurses now KNOW we are PERZ not Perez!
J.
We were just called to a room#1 where we were told to wait... Wait for what? We just found our Abi's chest is being closed.
Well a few minutes of anticipation resulted in a crying maybe 8 year old Hispanic boy, who just came from the surgery expecting to see his parents. Obviously we didn't look nothing like them, not even mentionig the skin color not matching.
Anyway I cried with the kid wishing this never happens to Abi. The nurses now KNOW we are PERZ not Perez!
J.
Surgery#2 - Update 3
11:15am
The repair has been finished and went well and as planned. The heart has been closed up and they will make the first and hopefully the only one attempt to take Abi off of the bypass machine. Once they do it and everything is fine they will close up her chest and start preparing her for CICU.
It will take another hour or a bit longer before we hear anything else.
Art
The repair has been finished and went well and as planned. The heart has been closed up and they will make the first and hopefully the only one attempt to take Abi off of the bypass machine. Once they do it and everything is fine they will close up her chest and start preparing her for CICU.
It will take another hour or a bit longer before we hear anything else.
Art
Surgery#2 - Update 2
10:00am
Phonce call # 2 from Stacy.
Abi is now on a heart-lung machine. She is tolerating all meds well. There were scar tissues but Dr Kirshbom was able to go through without any major problems and has just started the actual repair..
Some of the things I write I feel like I'm living in the past - and experiencing de ja vu.
I think this is a good thing... maybe we'll be able to be home within a week as well.
J.
Phonce call # 2 from Stacy.
Abi is now on a heart-lung machine. She is tolerating all meds well. There were scar tissues but Dr Kirshbom was able to go through without any major problems and has just started the actual repair..
Some of the things I write I feel like I'm living in the past - and experiencing de ja vu.
I think this is a good thing... maybe we'll be able to be home within a week as well.
J.
Surgery#2 - Update 1
8:47am
Just received a phone call from the nurse -Stacy - from the OR.
Abi didn't wake up when she was given anesthesia. The echo was done, lab test. SHe was prepped for the surgery, intubated and now Dr Kirshbom started actual surgery. He is cutting through the scar tissues that billed up after the first surgery. This may take a while. Next update in 1,5 hours.
J.
Just received a phone call from the nurse -Stacy - from the OR.
Abi didn't wake up when she was given anesthesia. The echo was done, lab test. SHe was prepped for the surgery, intubated and now Dr Kirshbom started actual surgery. He is cutting through the scar tissues that billed up after the first surgery. This may take a while. Next update in 1,5 hours.
J.
7.27am
7.27am
On July 24, 2009 at 7.27am Abi was born.
Today at 7.27am she went in to the OR
Art
- Posted using BlogPress from my iPhone
On July 24, 2009 at 7.27am Abi was born.
Today at 7.27am she went in to the OR
Art
- Posted using BlogPress from my iPhone
Minutes before surgery
We are in the room with Abi and just gave her Pentobarbital to make her sleepy. The anasthesiologist just came in to tell us he will take even better care of Abi than before. And they did a really good job.
Now, waiting for Abi to fall asleep in our arms and take her to the OR.
More updates when she's at the surgery.
J.
Now, waiting for Abi to fall asleep in our arms and take her to the OR.
More updates when she's at the surgery.
J.
Up
5.26am
It's been a long short night. Abi was waking up often and so were we.
Now it's time to pack the stuff and head to the hospital in 25 minutes.
Art
~~~~~~~~~~~~~~~~~~~~
I just wanted to add that Abi slept with me in 1 bed tonight for the very first time. It was an interesting experience. She had hard time falling asleep in a different bed, not her crib, but I think she enjoyed the idea of mommy lying next to her. She woke up several times to reposition and to eat before midnight - the last time she could drink milk. She woke up again around 3am, 4am to see if I'm there and touch my face. It was soo cute. At 4:40am she woke up again, when she had some pedialite.
J.
It's been a long short night. Abi was waking up often and so were we.
Now it's time to pack the stuff and head to the hospital in 25 minutes.
Art
~~~~~~~~~~~~~~~~~~~~
I just wanted to add that Abi slept with me in 1 bed tonight for the very first time. It was an interesting experience. She had hard time falling asleep in a different bed, not her crib, but I think she enjoyed the idea of mommy lying next to her. She woke up several times to reposition and to eat before midnight - the last time she could drink milk. She woke up again around 3am, 4am to see if I'm there and touch my face. It was soo cute. At 4:40am she woke up again, when she had some pedialite.
J.
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About Abi's Blog
HELLO!!
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Early and Intermediate Outcome After Anatomic Repair of CCTGA
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CHD Abbreviations:
ASD - Atrial Septal Defect;
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect