Her dance makes my day!
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Abigail
Tuesday, April 3, 2012
Typical Tuesday
Haven't blogged in a while.
I am just impressed with Abigail's ability to communicate with us and can't believe how quickly she is growing into a big girl. Not a little baby anymore.
Tonight she told me that she wants daddy to read to her tonight. She said: "I want daddy to put me to bed. You go and take a shower and then work in daddy's office."
She saw me once working from Art's office.. :)
Last Sunday we decided to have a picnic in our backyard and eat dinner outside on the blanket. We had so much fun eating, talking, tickling, hugging and laughing together. Art and I started playing volleyball, that Abi inflated (with the manual pump by herself, by the way!) and Abi sat on the blanket and said: "you guys play I will watch you here". :))
There are so many little precious moments and things that we take for granted or quickly forget. Time flies and I want to make a point to notate those little things somewhere - it may be as well on her blog..
I'll try to get better at this.
JP
- Posted using BlogPress from my iPhone
I am just impressed with Abigail's ability to communicate with us and can't believe how quickly she is growing into a big girl. Not a little baby anymore.
Tonight she told me that she wants daddy to read to her tonight. She said: "I want daddy to put me to bed. You go and take a shower and then work in daddy's office."
She saw me once working from Art's office.. :)
Last Sunday we decided to have a picnic in our backyard and eat dinner outside on the blanket. We had so much fun eating, talking, tickling, hugging and laughing together. Art and I started playing volleyball, that Abi inflated (with the manual pump by herself, by the way!) and Abi sat on the blanket and said: "you guys play I will watch you here". :))
There are so many little precious moments and things that we take for granted or quickly forget. Time flies and I want to make a point to notate those little things somewhere - it may be as well on her blog..
I'll try to get better at this.
JP
- Posted using BlogPress from my iPhone
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About Abi's Blog
HELLO!!
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Early and Intermediate Outcome After Anatomic Repair of CCTGA
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It's time for the big one. Congenitally Corrected Transposition of the Great Arteries (ccTGA, LTGA). In normal, healthy heart there are...
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Alright, time for another post. For today I picked another of Abigail's heart's complexities, namely Pulmonary Stenosis (PS). There ...
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We found out today about the upcoming surgery in Atlanta.. It's scheduled on December 8th. We're leaving on Sunday, December 6th, ...
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Transposition of the Great Arteries (TGA) In Transpotition of the Great Arteries both, Aorta and Pulmonary Artery are transposed (inverted) ...
CHD Abbreviations:
ASD - Atrial Septal Defect;
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect