Respiratory Rate

10.30pm




Before the first surgery Abi's respiratory rate at rest was 60-70 and just right before the surgery was getting as high as 80-90. After the surgery it dropped down to mid 40s and when it got in to 50s we chec
ked with her cardiologist and this is when they found out the obstruction.

We just counted her breaths and ...... 36/minute while she's sleeping. How awesome is that!!! ;-)

Art


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Simple joys..

Abi is such a happy little girl. She had a lot of fun with daddy today, who apparently was in the shopping mood and got Abi a hat, pull out the cart cover - not mentioning color coordination of her outfit. Well done. :)

We practically do not need any toys. She enjoys empty paper cups, plastic bottles and coasters, even her empty tray seems interesting to her...

 

She can play with them for a very long time.

She is such a joy! I can't wait sometimes to be woken up by her to feed her in the middle of the night (I'm serious), so I could cuddle her and kiss her sweet and sleepy little face. I am addicted to giving her kisses!!

J.

wersja polska

2 weeks after surgery & doing great

Just a short update.

Abi continues doing great. She is so active now we have to keep our eyes on her all the time. She grabs everything that is close enough, even when getting it means leaning forward so far while sitting that her chest touches the ground between her legs and she needs to stretch her arms as much as she only can.

She is so adorable, "talking" all the time, giggling and never letting smile off her face.

Her feeding habbits are getting better and evening routines are improving too. More predictable and much easier.


Her grandpa is doing very well too and can't wait to come and meet her ;-)

Thank you all fo your thoughts and prayers!











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The first Post-Op behind us

We have our first post-op visit (first after the second surgery) behind us. It went very well, except the x-Ray itself. Abi just hates x-Ray with passion, though the results were awesome. Both the x-Ray and echo look very well and seems like the repair is working great. The cardiologist was very pleased with how things look and how Abi is doing and recommended the following medical treatment for now: Love Her, Feed Her and Let Her Grow ;-)

We got the Lasix down to half of what she was getting so far and we are going for another visit in 2 weeks. We hope to lower Lasix even more then and to maybe totally stop giving her Prinivil (the blood pressure medicine).

Thank you to all of you praying for her and us and for all your comments!!!!

Greets

Cardiologist Post Op Appointment

9.16pm

Tomorrow we're going to the first post-op cardiac appointment. X-Ray early in the morning and then cardiologist. We're pretty anxious to be honest though Abi has been doing great since the surgery. She eats great and is back to being the wonderful herself except for nights. Again she's waking up often and seems to have harder time falling asleep in the evenings.

We'll know more tomorrow!

Have a great night every one!




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5th Day Post Op

8.41pm

Our little Ms Muffin is doing great; like nothing happened 5 days ago. She's very active, moving around all the time and curious about everything; seems like the surgery hasn't slowed her down in any aspect and she is comfortable and not in pain. She's not only responding. but is initiating smiles like she wants to show how cute her smile is.





Her eating habits haven't changed much since the pre-surgery time. She is still into solids more than into milk. The breathing has definitely improved. She seems to be on a 'hospital' schedule and wakes up several times a night. That's a pretty significant change comparing to the nights she slept through before the surgery. We hope to get there again soon.

Good night,

First Night Home

Abi was very happy to be back home, back in her bed and back in her high chair. After the bath she fell asleep almost immediately though she treated it as a nap and was up an hour later. Then it took her a while to fall back asleep. She woke up 3 hours later about midnight, ate like a champ and went back to sleep. Woke up again at 4.30am ate really well again and went back to sleep just to wake up about 6.45am and chill on her own in her bedroom for the next 45 minutes. Yup, no crying no fussing while waiting for her time to get up.

She's really happy and all smiles all the time. We didn't have to give her any pain killers overnight nor in the morning.

She's doing great so far!!!

Art


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