The cardiologist appointment went fantastic. Once again, Abi's weight (22lb 5oz), height (30in), heart rate, blood pressure, saturation (97) and everything we saw during the heart echo was just perfect.
The entire repair done during the double switch, VSD closure, the pulmonary venous baffle and its later repair all look great and work great. Her Ebsteinoid tricuspid valve is leaking much less and today it was more on the mild side than mild-to-moderate. Both ventricles are squeezing strong, heart beat is slow and steady and heart's efficiency is really good.
There was absolutely nothing that would even slightly concern Dr.Greene and the next appointment is in 6 months! ;-)
Once we confirm things continue going this well, next appointment will be in 9 months and then annually.
We are absolutely thrilled and happy!
Thank you for your prayers!
~Art
Abigail
![Abigail](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWOf3o0bBDymwrBMMmguW5f3Xf0mSRRYavcuMo3m3iQ_lWz8WJ9tJMi3QlmAbWUvZR8gkf4kuqp-4MWEi1HZuEYhdYbruj-QzRaTzUng7EGLZ-melHL6i1LlaydyTotSDelxCNvjvdr7VI/s1600-r/Abi_Newborn018.jpg)
Tuesday, August 3, 2010
Monday, August 2, 2010
1st Cardio visit in 3 months...
It is hard to believe that 9 months ago we were in such a rough place with Abi, waiting all day in the waiting room while she underwent her first open heart surgery (Double Switch and VSD closure) and now were are 'celebrating' a 5-month-iversary of her 2nd OHS that took place in March.
It seems like it was longer than that. I remember that we were not expecting to hear any bad news at the follow-up checkup (2 months after the surgery), though we had noticed her faster breathing and 3 weeks later we were back in Atlanta.
Every time we go to see the cardiologist, I experience a mixture of emotions. I am anxious to hear everything looks great and there haven't been any changes. I want to hear the guarantee that she'll be fine from now on and the previous experiences are in the past, never to be repeated.
We do not anticipate any surprising news tomorrow. We diligently observe Abi's reactions, food intake and behavior. She seems to have unlimited supplies of energy, eats for two and is always in a good mood.
We are looking forward to the great report tomorrow. We'll update the blog with the news that the next cardiologist appointment is in 6 MONTHS!!??? ;)...
That would be sweet....
jp
It seems like it was longer than that. I remember that we were not expecting to hear any bad news at the follow-up checkup (2 months after the surgery), though we had noticed her faster breathing and 3 weeks later we were back in Atlanta.
Every time we go to see the cardiologist, I experience a mixture of emotions. I am anxious to hear everything looks great and there haven't been any changes. I want to hear the guarantee that she'll be fine from now on and the previous experiences are in the past, never to be repeated.
We do not anticipate any surprising news tomorrow. We diligently observe Abi's reactions, food intake and behavior. She seems to have unlimited supplies of energy, eats for two and is always in a good mood.
We are looking forward to the great report tomorrow. We'll update the blog with the news that the next cardiologist appointment is in 6 MONTHS!!??? ;)...
That would be sweet....
jp
Thursday, July 29, 2010
Abi's 1st Birthday Party Pictures
On Saturday, July 24, 2010 we celebrated Abi's 1st Birthday !!! It was a great and fun day.
Thank you everyone who helped make this happen and everyone who showed up! There would be no party without you ;-)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFLE7ttyLa214RYhuUkQN_ZYfj9V1MZ1KAtH5_hcsqkKL6ddHrlPEtSCS3ioXnht1ILcg6GFagGShzIJuGQm9NQvzS2Jj6tqGJAbL3z0MFdHne2-AGS-qOx9WsvNgC-ZjUTDVrAz1xUhdS/s320/18.jpg)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrrZ7e8anDatz6iY6ZUeTl9M-qmJkGElOxNpyn9mvlNa2hxcHFNyF5oxZ7lZvv7MP66qNbasq_Sl9wPVFR7FQx2bTtMwEvK8o-tFxjW5CGPEz_zL0uySsAvH9yp1-2hDIJijRDZpUZDnbj/s320/19.jpg)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFye8emBdMD3A6ZqbtrujN_LFGWQuQB9elUKs_2Oh4F-ADXbIs9X02rUYDFqWHG8HXFCjNxjrUKbqxHQLYp8wXnMwjrE-OvpRoQm2z5rHmv7wYMqTCPVf6ZQTY_NIF_bUSCgjYJNtFykQk/s320/20.jpg)
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![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhFRuS7lUqyph11cE2_PDufpdgeY2t4IlADRgWOvxB3ESbyrAMhun-Hrk9xT1JkOq2wHb3uXy6ybPjNO1GKDx_9arPnh8UfmvdqrauuxiPKv3Ct97FyWhZm0p2JmFAWlqgdY0nPETFtyPjZ/s320/23.jpg)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLMMq8lnQXHwBIEYZXleOg9VRRRcGQLs0c9nQn0yyioKPzakw1uZuG6UUbCX_VacxFnToLcNfn7nGBjOOdtjLDdxXNMepG4jrWDJ1S4fIE2hn5udSdQmxwXy-TmuFjTrJuEYZ5igwQAmwn/s320/24.jpg)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiCjl6Xn2yPkxiEqjfOj15sXdkK_MGZ2cD-mzD8kGBC5h7bhH3U94omUFrKVjps864kDGmU3JflhyphenhyphenbSC79jj_5LBixTwsWnU5ib5fT_aUdaID0RvJs1zrCvQGZ6Ljg5gAMXuSiW2UXI8pYi/s320/25.jpg)
Thank you everyone who helped make this happen and everyone who showed up! There would be no party without you ;-)
Mommy sang happy birthday upon awaking...
Dad and uncle Eric chilling
Mom and Dad
With grandma
Blowing the candle
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFLE7ttyLa214RYhuUkQN_ZYfj9V1MZ1KAtH5_hcsqkKL6ddHrlPEtSCS3ioXnht1ILcg6GFagGShzIJuGQm9NQvzS2Jj6tqGJAbL3z0MFdHne2-AGS-qOx9WsvNgC-ZjUTDVrAz1xUhdS/s320/18.jpg)
First bite ;-)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrrZ7e8anDatz6iY6ZUeTl9M-qmJkGElOxNpyn9mvlNa2hxcHFNyF5oxZ7lZvv7MP66qNbasq_Sl9wPVFR7FQx2bTtMwEvK8o-tFxjW5CGPEz_zL0uySsAvH9yp1-2hDIJijRDZpUZDnbj/s320/19.jpg)
No comments ;-)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFye8emBdMD3A6ZqbtrujN_LFGWQuQB9elUKs_2Oh4F-ADXbIs9X02rUYDFqWHG8HXFCjNxjrUKbqxHQLYp8wXnMwjrE-OvpRoQm2z5rHmv7wYMqTCPVf6ZQTY_NIF_bUSCgjYJNtFykQk/s320/20.jpg)
Gifts time
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQ8-MphOCYU5EtJHsaxbUZcbWeAiKHdd35zXrvy5KiA5MEGWfE28zwcslP5I55rYZ4ugP4YKIm5gTylPgS1SsxLTq6WXsspzOdhzuqYinhttMH9SLBDxsu7u_scF41cYWculfJnjt9j1He/s320/21.jpg)
Julie, Kayah and Ally
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhFRuS7lUqyph11cE2_PDufpdgeY2t4IlADRgWOvxB3ESbyrAMhun-Hrk9xT1JkOq2wHb3uXy6ybPjNO1GKDx_9arPnh8UfmvdqrauuxiPKv3Ct97FyWhZm0p2JmFAWlqgdY0nPETFtyPjZ/s320/23.jpg)
Uncle Jeremy
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLMMq8lnQXHwBIEYZXleOg9VRRRcGQLs0c9nQn0yyioKPzakw1uZuG6UUbCX_VacxFnToLcNfn7nGBjOOdtjLDdxXNMepG4jrWDJ1S4fIE2hn5udSdQmxwXy-TmuFjTrJuEYZ5igwQAmwn/s320/24.jpg)
On the phone with another grandma
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiCjl6Xn2yPkxiEqjfOj15sXdkK_MGZ2cD-mzD8kGBC5h7bhH3U94omUFrKVjps864kDGmU3JflhyphenhyphenbSC79jj_5LBixTwsWnU5ib5fT_aUdaID0RvJs1zrCvQGZ6Ljg5gAMXuSiW2UXI8pYi/s320/25.jpg)
On the way home ;-)
Monday, July 26, 2010
1 year old check-up follow-up
Abi's 1st year check-up results:
22 Lbs 7 oz
30 in
It placed her in the 75% for both weight and length.
She's doing wonderful. Dr. Annie was thrilled! Everything is going perfect!!!
We couldn't be happier ! :-)
Art
22 Lbs 7 oz
30 in
It placed her in the 75% for both weight and length.
She's doing wonderful. Dr. Annie was thrilled! Everything is going perfect!!!
We couldn't be happier ! :-)
Art
1 year old check up
10.20am
We are now going to Abi's 1year old check up, first doctor appointment in 3 months.
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgXhrFPwjoPA1ZCTN_wtmwyvpblpSU_ZJxD_iTnmm8G-6IOh3E5qgHwou9WIAmW7bhzJWE16uBcfGwqKLKW9wiOF6ROLZ1yEIf2MLG43E5qrL-mvAnnJLnFw5nBkewjmwy8G29nZjnsfMTA/s288/iphone_photo.jpg)
Details to come soon :-)
Art
- Posted using BlogPress from my iPhone
We are now going to Abi's 1year old check up, first doctor appointment in 3 months.
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgXhrFPwjoPA1ZCTN_wtmwyvpblpSU_ZJxD_iTnmm8G-6IOh3E5qgHwou9WIAmW7bhzJWE16uBcfGwqKLKW9wiOF6ROLZ1yEIf2MLG43E5qrL-mvAnnJLnFw5nBkewjmwy8G29nZjnsfMTA/s288/iphone_photo.jpg)
Details to come soon :-)
Art
- Posted using BlogPress from my iPhone
Saturday, July 24, 2010
7.27am
Last year at 7.27am EDT our beautiful little Ms Muffin came to this world! We had known it would be a difficult year ahead of us, but we've come to a better place that we could have imagined!
Happy Birthday Abigail!!!!! We love you so much there are no words in any language to describe it!!!
July 25, 2009 Neonatal Intensive Care Unit
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-Uq53Ymx16dn0yLO9ZWPI3oMintsWSrgmv_78V4jTpz2lA3uy_X2TWDoKWJcvcuZTP4VozL4D9sREnlWjkaDK5Ok5IAF9TFIzkY0hs3oliUBGCrcxAZwVVyoc5GhPotAZU8TKdaFmejR9/s288/iphone_photo.jpg)
July 3rd, 2010
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEio1LbESSX_nX1EXh3RUvmKZBmAOlSj5Qhs95tt7sBObt3oDgAdZ1CIcyTepivdjz3KOZVcgUezAuuMmnpDFLiQ2LzTH1efWk3Z8u12rDuMte0M9suVtxbX43YcZ2TIOhyphenhyphenpkxQkFRSrnD6l/s288/iphone_photo.jpg)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEigU4GLPEidHKLeNPQUbgicpwCJEI__-Etdz_JYDTz41Ck91V7DDOM6CA0ZtTdUToG7ZSgckN_J0xac-WZ0Lw5Wtd6kxyA6_KrtylspwUaQbkgjqMBPr9pCUXzHbrGSi_zTD095E3Oyi3Nq/s288/iphone_photo.jpg)
July 23rd, 2010
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYNb0QcsRCY6PoZDcAacDCIhiWyeJCwWKyh2maKRitfzm_QC7XbKDKL3gGO8KKUbev-_x8DfESBrlEmI4TG3a2VsF8zuydqMEDJ2vHwXTxZcOFeDZzOdAeEbS2Vav-kflblqfeB4neYpDi/s288/iphone_photo.jpg)
Art
- Posted using BlogPress from my iPhone
Happy Birthday Abigail!!!!! We love you so much there are no words in any language to describe it!!!
July 25, 2009 Neonatal Intensive Care Unit
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg-Uq53Ymx16dn0yLO9ZWPI3oMintsWSrgmv_78V4jTpz2lA3uy_X2TWDoKWJcvcuZTP4VozL4D9sREnlWjkaDK5Ok5IAF9TFIzkY0hs3oliUBGCrcxAZwVVyoc5GhPotAZU8TKdaFmejR9/s288/iphone_photo.jpg)
July 3rd, 2010
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEio1LbESSX_nX1EXh3RUvmKZBmAOlSj5Qhs95tt7sBObt3oDgAdZ1CIcyTepivdjz3KOZVcgUezAuuMmnpDFLiQ2LzTH1efWk3Z8u12rDuMte0M9suVtxbX43YcZ2TIOhyphenhyphenpkxQkFRSrnD6l/s288/iphone_photo.jpg)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEigU4GLPEidHKLeNPQUbgicpwCJEI__-Etdz_JYDTz41Ck91V7DDOM6CA0ZtTdUToG7ZSgckN_J0xac-WZ0Lw5Wtd6kxyA6_KrtylspwUaQbkgjqMBPr9pCUXzHbrGSi_zTD095E3Oyi3Nq/s288/iphone_photo.jpg)
July 23rd, 2010
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYNb0QcsRCY6PoZDcAacDCIhiWyeJCwWKyh2maKRitfzm_QC7XbKDKL3gGO8KKUbev-_x8DfESBrlEmI4TG3a2VsF8zuydqMEDJ2vHwXTxZcOFeDZzOdAeEbS2Vav-kflblqfeB4neYpDi/s288/iphone_photo.jpg)
Art
- Posted using BlogPress from my iPhone
Wednesday, July 21, 2010
3 Days To The Turn
Yes, only 3 days left and our little girl turns 1!!!! I can't believe it has already been a year! And what a year!!! Unbelievably difficult, challenging and stretching us in every possible way, but being where we are today I would not change it for anything else!!!
I have a wonderful wife, dream-daughter, my parents are fine and finally made it here to NC!
Next Monday we are going with Abi for her 1 year old checkup and the following week to her cardiologist appointment. First doctor visits in 3 months! We will sure keep you updated!
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrVrMJit6CDj5Eiul2uqVx-ptsFLJvNXyZGsXR4Ojnea8K8wziI2tsgcPoMSeexYWClf1TJpbpfUAUw0Ovld1hZLHK0uOBPG_CQpew7Vpx6B7D8SFUKXPGOcXL-NhMABnlHJtB2U_iK9at/s288/iphone_photo.jpg)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg_qRUpBpKGKx6udnQ75HrujXFwFOp83JdknHpE6GKY4ue3ySn7XcE5548XrcGovDSNcR4EDp8rcmOyv0LCA-YIa6jR2j907QzjMss5tgK9X2Ssk8qHJWJ6Pbf4jDc7D3JxEdpGoD9HT6ef/s288/iphone_photo.jpg)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhleQnOa8P-1vIF7HvYmGG3X_yaIJvOu0CZdFSrP-kI66VJmG5xz75Km4M_eaNbgxBJhYQLpHSG0sr1vMk6CtaALsrTCIioiealVikvKR2Vv1J_xdQO0Y-olnwtsKTt8fhPodaiXFz_-JVm/s288/iphone_photo.jpg)
Art
- Posted using BlogPress from my iPhone
I have a wonderful wife, dream-daughter, my parents are fine and finally made it here to NC!
Next Monday we are going with Abi for her 1 year old checkup and the following week to her cardiologist appointment. First doctor visits in 3 months! We will sure keep you updated!
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrVrMJit6CDj5Eiul2uqVx-ptsFLJvNXyZGsXR4Ojnea8K8wziI2tsgcPoMSeexYWClf1TJpbpfUAUw0Ovld1hZLHK0uOBPG_CQpew7Vpx6B7D8SFUKXPGOcXL-NhMABnlHJtB2U_iK9at/s288/iphone_photo.jpg)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg_qRUpBpKGKx6udnQ75HrujXFwFOp83JdknHpE6GKY4ue3ySn7XcE5548XrcGovDSNcR4EDp8rcmOyv0LCA-YIa6jR2j907QzjMss5tgK9X2Ssk8qHJWJ6Pbf4jDc7D3JxEdpGoD9HT6ef/s288/iphone_photo.jpg)
![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhleQnOa8P-1vIF7HvYmGG3X_yaIJvOu0CZdFSrP-kI66VJmG5xz75Km4M_eaNbgxBJhYQLpHSG0sr1vMk6CtaALsrTCIioiealVikvKR2Vv1J_xdQO0Y-olnwtsKTt8fhPodaiXFz_-JVm/s288/iphone_photo.jpg)
Art
- Posted using BlogPress from my iPhone
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About Abi's Blog
HELLO!!
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Early and Intermediate Outcome After Anatomic Repair of CCTGA
Archives
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Popular Posts
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It's time for the big one. Congenitally Corrected Transposition of the Great Arteries (ccTGA, LTGA). In normal, healthy heart there are...
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Alright, time for another post. For today I picked another of Abigail's heart's complexities, namely Pulmonary Stenosis (PS). There ...
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We found out today about the upcoming surgery in Atlanta.. It's scheduled on December 8th. We're leaving on Sunday, December 6th, ...
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Transposition of the Great Arteries (TGA) In Transpotition of the Great Arteries both, Aorta and Pulmonary Artery are transposed (inverted) ...
CHD Abbreviations:
ASD - Atrial Septal Defect;
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect