Abi has one of those convertible cribs that transform through a toddler's bed to a full bed. Just for kicks we decided to take the one side off of the bed and see how Abi would handle the new setup.
Unfortunately Abi's bed has the top, decorative board that is permanently attached to the bed which contributed to the test failure.
Why do we think both, Abi and the bed failed the test? See yourself below ;-) No bed change until she's 2nd
Art
- Posted using BlogPress from my iPhone
Abigail
Thursday, March 24, 2011
Wednesday, March 23, 2011
Spring in NC
We love spring in NC. One of the most beautiful seasons. Great time to play outdoors and go to parks and playgrounds.
Just some pictures from past couple days
Art
- Posted using BlogPress from my iPhone
Just some pictures from past couple days
Art
- Posted using BlogPress from my iPhone
Thursday, March 3, 2011
1 Year Ago Today
It's been one year; one year ago, today Abi had her second and last (we pray it was her last one) open heart surgery!
Just couple pictures to remember the journey and give God praise for walking with us.
She's so strong and she's the most wonderful gift J and I could have been given. We would never trade her for any other ;-)
Art
Just couple pictures to remember the journey and give God praise for walking with us.
She's so strong and she's the most wonderful gift J and I could have been given. We would never trade her for any other ;-)
Art
Sunday, February 27, 2011
No fear no giving up
Sunday afternoon Abi showing off on her 4-wheeler and running up and down the hill with her stroller.
- Posted using BlogPress from my iPhone
- Posted using BlogPress from my iPhone
Tuesday, February 22, 2011
Day Off
Last month I planned a day off for today planning to be in a seminar, but I missed the registration deadline and I didn't go. This gave me a whole day with Abi. And it was a beautiful day; 69F and sunny. Great day for a date with my little girl ;-)
We went shopping to one of the malls near Charlotte and we had a blast. This is Abi 'shopping' and having lunch with me
From the mall we went home so Abi could take her nap and then we headed out to the playground picking up Aly, Abi's older friend.
After all of this fun we ended up home for dinner, more outdoors playing and books reading and of course watching a cartoon eating apples
It was such a fun day! Abi has changed so much within the past couple weeks it is hard to believe! She talks more, uses more words, puts 2-3 words together, is pure fun and joy to have her around.
Nope, it's not easy hehe, I'm exhausted, but spending time with her like this is one of the best things that could have ever happened to me.
Art
- Posted using BlogPress from my iPhone
We went shopping to one of the malls near Charlotte and we had a blast. This is Abi 'shopping' and having lunch with me
From the mall we went home so Abi could take her nap and then we headed out to the playground picking up Aly, Abi's older friend.
After all of this fun we ended up home for dinner, more outdoors playing and books reading and of course watching a cartoon eating apples
It was such a fun day! Abi has changed so much within the past couple weeks it is hard to believe! She talks more, uses more words, puts 2-3 words together, is pure fun and joy to have her around.
Nope, it's not easy hehe, I'm exhausted, but spending time with her like this is one of the best things that could have ever happened to me.
Art
- Posted using BlogPress from my iPhone
Tuesday, January 25, 2011
Today's Cardiologist Visit
Today we went with Abi for her cardiologist appointment; first in 6 months. 6 months it's been the longest in between visits in her entire life. She did great during the appointment, though she was much less distractible then the last time when she was younger.
The puls-ox, when it was finally able to do any reading, showed saturation at 96% which is really good. Due to Abi's unwillingness to cooperate we were not able to check her blood pressure, but she did remarkably well during heart echo and we got very good pictures. Abi had most fun with EKG - playing with the wires attached to her chest with 'stickers' and then taking the stickers off on her own- the visit couldn't have ended better for her. She loves stickers ! :-)
Her Ebstenoid tricuspid valve is not leaking much and does not seem to affect her in any negative way. If there are no changes to it she may never need a surgery to repair or replace it.
The pulmonary baffle that was created during double-switch surgery and corrected last year is wide open. No blood flow obstruction! That's a wonderful news!
The next important thing to check was possible leakage where the TGA repair was made. Nothing wrong there either!
It was one of the best appointments ever! Once again we got into talking about Abi's future, and I mean FUTURE. It is possible things may change with her growing, but it is possible she will not need any medical, heart related intervention in a long time, if ever. If she was 16 years old now with her heart looking this good, she would most probably never need anything done with any of the defects and/or repairs.
She's absolutely amazing! ! !
Art
Subscribe to:
Posts (Atom)
About Abi's Blog
HELLO!!
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Early and Intermediate Outcome After Anatomic Repair of CCTGA
Archives
Videos
Popular Posts
-
It's time for the big one. Congenitally Corrected Transposition of the Great Arteries (ccTGA, LTGA). In normal, healthy heart there are...
-
Alright, time for another post. For today I picked another of Abigail's heart's complexities, namely Pulmonary Stenosis (PS). There ...
-
We found out today about the upcoming surgery in Atlanta.. It's scheduled on December 8th. We're leaving on Sunday, December 6th, ...
-
Transposition of the Great Arteries (TGA) In Transpotition of the Great Arteries both, Aorta and Pulmonary Artery are transposed (inverted) ...
CHD Abbreviations:
ASD - Atrial Septal Defect;
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect