7.28pm
Today was a good day after second rough night. Last night Abi was up every 1.5-2 hours to eat. Yes, definitally snacking. She does pretty well during the day staying on 3 hour shedule, but for some reason evenings, after the bath are very difficult and nights are pretty exhausting. We haven't figured this out yet. Before the hospital our evening routines were so sweet and she slept through the night waking up once maybe twice, but it has changed since we came back home.
Now she's sleeping again after screening bloody murder and we couldn't figure out what was wrong. We ended up giving her some infant Tylenol in case it was pain related.
We'll see what this night will bring.
And on Tuesday cardiologist follow up visit. Before this visit we have to get her x-Ray done. So tomorrow we will need to find a place near home where we can take care of it.
Have a good night everybody!
Art
- Posted using BlogPress from my iPhone
Abigail
Sunday, December 20, 2009
Saturday, December 19, 2009
2 weeks ago...
10:00 pm
It's been almost two weeks since we said our goodbyes to grandma at the Charlotte airport...
and the Atlanta roller-coaster....
J.
It's been almost two weeks since we said our goodbyes to grandma at the Charlotte airport...
and the Atlanta roller-coaster....
Friday, December 18, 2009
First laugh!!
12:45pm
I can't believe Abi finally laughed out loud for the very first time today!
I barked while showing her a doggie she recevied from the Lab nurses in the hospital last week and she found it extremely funny. What an awesome sound!
The same day we left the hospital she started cooing like never before, like she wanted to say something or burst out laughing...
A week before Christmas and I have already received my gifts.. Have you?
Blessings,
J.
I can't believe Abi finally laughed out loud for the very first time today!
I barked while showing her a doggie she recevied from the Lab nurses in the hospital last week and she found it extremely funny. What an awesome sound!
The same day we left the hospital she started cooing like never before, like she wanted to say something or burst out laughing...
A week before Christmas and I have already received my gifts.. Have you?
Blessings,
J.
Thursday, December 17, 2009
The lottery...
9:20pm
I feel like I won the lottery today... Still mesmerized and with a note of disbelief I am looking at my happy, super hungry baby as the 8th day is passing by since the surgery... She is a gift from God and her speedy recovery after the extensive surgery; smiley face; adorable coos are like winning a million bucks.
Today she has eaten as much as she used to within 2 days! 34 ounces so far and the day is not over yet. We fed her cerial twice today and she tasted some bananna.
Hopefully, Abi will get some rest tonight after very few cat naps during the day today. Last night she woke up only twice, so I think my hope for an interupted sleep for 5 hours is pretty
realistic.
Abi amazes me every day. It's intersting how a barely 5 month-old can impact and change your life.
I couldn't have asked for a more wonderful daughter!
Thank you for your prayers for a quick recovery for Abi...
J.
I feel like I won the lottery today... Still mesmerized and with a note of disbelief I am looking at my happy, super hungry baby as the 8th day is passing by since the surgery... She is a gift from God and her speedy recovery after the extensive surgery; smiley face; adorable coos are like winning a million bucks.
Today she has eaten as much as she used to within 2 days! 34 ounces so far and the day is not over yet. We fed her cerial twice today and she tasted some bananna.
Hopefully, Abi will get some rest tonight after very few cat naps during the day today. Last night she woke up only twice, so I think my hope for an interupted sleep for 5 hours is pretty
realistic.
Abi amazes me every day. It's intersting how a barely 5 month-old can impact and change your life.
I couldn't have asked for a more wonderful daughter!
Thank you for your prayers for a quick recovery for Abi...
J.
Morning Apetite
8.04am
When we got home last night Abi ate great and went to bed. She woke up at midnight to eat again. Now she surprised us when she ate 175ml (almost 6oz). That was incredible and it was just a prelude to the next feeding at 5am. Yes, Abi slept another 5 hours and then ate 210ml (7oz) !!!!
Just to make it clear before the surgery she ate about 90ml (2-3oz) per feeding and ones she ate 160ml and we were so happy. It's an almost instant jump from 2-3oz to 6-7oz. In the hospital they said they would be happy if she started with 80ml (almost 3oz) per feeding.
Another great news and the day has just started.
Art
- Posted using BlogPress from my iPhone
When we got home last night Abi ate great and went to bed. She woke up at midnight to eat again. Now she surprised us when she ate 175ml (almost 6oz). That was incredible and it was just a prelude to the next feeding at 5am. Yes, Abi slept another 5 hours and then ate 210ml (7oz) !!!!
Just to make it clear before the surgery she ate about 90ml (2-3oz) per feeding and ones she ate 160ml and we were so happy. It's an almost instant jump from 2-3oz to 6-7oz. In the hospital they said they would be happy if she started with 80ml (almost 3oz) per feeding.
Another great news and the day has just started.
Art
- Posted using BlogPress from my iPhone
Wednesday, December 16, 2009
We are home!!!
10:15pm
We made it in 4 hours, with no stops and Abi sleeping through the whole trip!! How great is that? She drank a bottle just before we hit the road and slept like an angel till we stoped on our driveway! She ate a full meal, chilled with us, auntie Allison and uncle Drew who made dinner for us; took a quick bath, ate MORE, smiled and talked to mommy; took medicine and went to bed!
It is so wonderful to be back home, that to our big surprise was beautifully decorated with flowers, baloon, Christmas accents and a Christmas tree with presents underneath in the leaving room! Fresh food in the fridge just completed the picture.
We are so thankful for our friends who have been supporting us in this difficult time! Your prayer have paid off and resulted in Abi being at home after barely 7 days after the surgery(!) with only 1 medicine, no feeding tube and a huge apetite! Sometimes people need more time to recover from a cold!!
Abi is my hero! Such a brave and strong little girl!!!
THANK YOU AGAIN FOR YOUR PRAYERS!
J.
We made it in 4 hours, with no stops and Abi sleeping through the whole trip!! How great is that? She drank a bottle just before we hit the road and slept like an angel till we stoped on our driveway! She ate a full meal, chilled with us, auntie Allison and uncle Drew who made dinner for us; took a quick bath, ate MORE, smiled and talked to mommy; took medicine and went to bed!
It is so wonderful to be back home, that to our big surprise was beautifully decorated with flowers, baloon, Christmas accents and a Christmas tree with presents underneath in the leaving room! Fresh food in the fridge just completed the picture.
We are so thankful for our friends who have been supporting us in this difficult time! Your prayer have paid off and resulted in Abi being at home after barely 7 days after the surgery(!) with only 1 medicine, no feeding tube and a huge apetite! Sometimes people need more time to recover from a cold!!
Abi is my hero! Such a brave and strong little girl!!!
THANK YOU AGAIN FOR YOUR PRAYERS!
J.
Packing
9.57am
Yes, you gor that right. We're packing now and leaving the hospital soon.
Abi had another great night. Ate 80ml in the evening. Than we told the nurse we won't wake her up after 3 hours becuase at home in the evening after the bath we don't wake her up. She's on a 3 hour schedule during the day and overnight she wakes up on her own. So she woke up a bit over 4 hours later and ate 95ml. In the morning she had another 135ml and 3 hours later another 130ml. Over 4oz at a time is better than before the surgery.
Now we are ready to leave despite the view out the window.
Art
- Posted using BlogPress from my iPhone
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About Abi's Blog
HELLO!!
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
This blog is created not only to keep our family and friends updated on Abi's condition, events, surgeries and everyday life... but also to provide legit and educated information about Congenital Heart Defects that touch 1 in 100 babies.
Welcome to Abi's blog with hopes you will find it useful, interesting, touching and even entertaining...
Here are some facts about our sweet baby girl:
Abi was born on July 24th, 2009 with several heart defects that were detected prenatally at 18 weeks: Congenitally Corrected Transposition of the Great Arteries (Congenitally Corrected Transposition of the Great Vessels) (CCTGA = LTGA = L-TGA), Ebstein's Malformation (Ebstein's Anomaly) (malformed tricuspid valve), Pulmonary Stenosis and VSD.
Her first surgery - PA band - was scheduled for December 8th, 2009, however unexpectedly was changed to an Open Heart Surgery (OHS) called Double Switch performed on December 9th, 2009, originally planned for much later...
Second OHS was scheduled for March 3rd, 2010 to correct the baffle created during the 1st surgery.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
Thank you for your support and prayers.
Art & Joanna (Asia) & Abi.
You can CONTACT US at: blog@Care4Abi. com
“You never know how strong you are until being strong is the only choice you have!"
Thank you for your generous heart to help cover for Abi's medical expenses...
Early and Intermediate Outcome After Anatomic Repair of CCTGA
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It's time for the big one. Congenitally Corrected Transposition of the Great Arteries (ccTGA, LTGA). In normal, healthy heart there are...
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Alright, time for another post. For today I picked another of Abigail's heart's complexities, namely Pulmonary Stenosis (PS). There ...
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We found out today about the upcoming surgery in Atlanta.. It's scheduled on December 8th. We're leaving on Sunday, December 6th, ...
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Transposition of the Great Arteries (TGA) In Transpotition of the Great Arteries both, Aorta and Pulmonary Artery are transposed (inverted) ...
CHD Abbreviations:
ASD - Atrial Septal Defect;
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect
DILV - Double Inlet Left Ventricle;
HLHS - Hypoplastic Left Heart Syndrome;
HRV - Hypoplastic Right Ventricle;
LTGA - Levo-Transposition of Great Arteries;
PA - Pulmonary Atresia;
PDA - Patent Ductus Arteriosus;
PS - Pulmonary Stenosis;
TOF - Tetralogy of Fallot
VSD - Ventricular Septal Defect